Autism Support In early Childhood

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From early intervention, to support groups and family advocacy, a range of support services and resources are available for young children with autism and their families.

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Early intervention services

If your toddler or pre-schooler has been diagnosed with autism or is displaying signs or characteristics of Autism Spectrum Disorder (ASD), early intervention can be incredibly beneficial for their development.

Early intervention means undertaking therapies, practices or interventions, and accessing services to work on your child’s developmental needs as early as possible. The sooner your child accesses early intervention, the sooner functional skills across a range of areas can be developed.

Supports can include therapy, intervention, programs, strategies, coordination or sessions that can support your child’s development. They could take the form of specialised education, therapy, counselling, service planning and coordination, as well as assistance and support to access services such as kindergarten and childcare.

Services, or service providers, refer to the places and organisations that offer these supports. The aim of these services is to provide parents and families with the knowledge, skills and supporting professionals they need to optimise their child’s development, and ability to participate in social and community participation.

All supports and services for children on the autism spectrum should be centred around the child, their family, and should be well-structured and accessed through reputable and professional service providers.

State and territory governments and a range of service providers offer early childhood intervention services and early childhood education and care services, although the nature of these services and how they are implemented may vary between states and territories.

General supports and services

Early Childhood Early Intervention Approach

The Early Childhood Early Intervention (ECEI) approach is available to all children aged under 7 with a developmental delay or disability and is provided through the NDIS. ECEI services are available in some states and territories and can be contacted if concerns about your child’s development have been identified.

Early Childhood Partner can provide information about supports and services available in your local community and to connect you and your child with the most appropriate supports, such as the community health centre, educational setting and playgroup. ECEI can provide some short-term early where it has been identified as the most appropriate support.

The type of support that might be included are outlined on the NDIS website:

  • Information and linkages to help you access supports and services available in your local community.
  • Short-term early intervention supports if this is the best way to support your child.
  • Where your child may require longer term early childhood intervention supports, the Early Childhood Partner can help you request access to the NDIS.

Early Childhood Partner work with families to develop a plan that supports participants goals, and will link you with your chosen providers.

The Early Childhood Partner monitor and review your child’s progress against the goals you have set. Your Early Childhood Partner and service providers will support your family to improve your child’s independence and participation in everyday activities.

Autism Advisor Program

Autism Advisors provide free impartial and evidence-informed information and advice about early intervention services to families with a child under the age of seven who has a diagnosis of autism, or suspected of having autism.

They also provide information on Helping Children with Autism (HCWA) packages and transitioning from HCWA to NDIS funding.

They can support accessing the Early Intervention Funding package and the Early Intervention Service Provider Panel.

What can an Autism Advisor do?

An Autism Advisor can assist you with information and support in accessing services in your local area including:

  • Helping Children with Autism (HCWA) funding
  • Parent support groups
  • Parent and carer workshops.
  • Playgroups
  • Medicare options for therapy, diagnosis and assessment
  • Resources and other support options
  • Planning for transition to NDIS

Support groups

Many parents of children with autism find it useful to join a support group. Support groups can be a helpful way to share experiences, make friends, and discuss the stresses and successes of day-to-day life with a child with autism.

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MyTime groups provide support for parents, grandparents and carers of children under the age of 16 with a disability or chronic illness (not specific to autism). The groups provide parents and carers with an opportunity to socialise and meet other families, and to share ideas and thoughts on their journey so far. Children are also welcome to attend.

There are a vast number of online support groups available for parents and carers of children with autism too, they include:

Carers Gateway is a national service provided by the Australian Federal Government, that provides help, support, respite and tips to people who care for someone with a disability, disorder, injury, or the elderly. It provides phone counselling services, helps you to connect with other carers and have access to training and courses to help you develop the key skills you may need to manage the care of a dependant or loved one.

Early Days is a national program of free workshops for parents and carers of young children on the spectrum, and is available in both city and country regions. Parents and carers can learn about how to support their child and meet other parents or carers to provide community support. Online workshops or face to face Early Days workshops do not require a formal diagnosis of autism and can be a useful way to learn more before seeking a diagnosis. Information can be found at the Early Days website or for workshops in your local area visit your state autism support service provider.

The YMCA is a community-based charity that creates opportunities for people and communities to connect with a better life. They provide a range of programs and services that aim to strengthen people, families and communities. Examples of programs include swimming lessons for young children. In some cases, NDIS funds can be used, under the category ‘Increased Social and Community Participation’ to access YMCA programs.

Siblings Australia is committed to improving the support available for siblings of children and adults who have a chronic condition, including a disorder, disability, chronic illness or mental health problem. It can be a very helpful carer support service for siblings and families.

Facebook support groups for carers

  • Resources for Special Needs
  • ASD Matters
  • Friends Care Online
  • NDIS Grassroots Discussion
  • Autism Support Group for Aussie Mums

Playgroups

Play is an integral part of a child’s development in their early years, and children with autism are no different.

Playgroups offer babies, toddlers and young children on the spectrum with a wide variety of early learning experiences to help develop social skills and emotional confidence, imagination, creativity and physical activity.

Playconnect Playgroups

Playconnect Playgroups are autism-specific playgroups for children up to six years of age with autism.

Playconnect is based in various locations around Australia, and generally run for two hours per week. It provides parents and carers the opportunity to meet other families with children with autism in their area.

Sessions are run by a playgroup facilitator who can connect families with information on early intervention and support services in their local area. Playconnect is funded through the Helping Children with Autism Package so there is no cost for families to attend.

Supported Playgroups

Supported Playgroups provide a chance for parents and children who might find it challenging to access playgroups to develop social and family support networks, and participate in play experiences and activities.

Supported Playgroups are based in locations around Australia, run once a week for two hours, and are facilitated by a coordinator.

Supported Playgroups support families from one or more of the following groups within the community:

  • Culturally and linguistically diverse families
  • Indigenous families
  • Families with mental health or disability (either the parent or child)
  • Teenage and young parent families
  • Families who are socially isolated or disadvantaged

Call 1800 171 882 to find your nearest Playgroup or contact your state playgroup association directly.


Childcare and kindergarten

The Federal government, along with state and territory governments, provide support to childcare centres, family day care providers, and kindergartens to ensure children with autism have access to early childhood education.

Inclusion Support Program

The Inclusion Support Program helps early childhood and child care services build their capacity and capability to include children with autism and/or additional needs in mainstream services, providing them with an opportunity to learn and develop alongside their peers.

The program also aims to provide parents and carers of children with autism and/or additional needs with access to appropriate early childhood and child care services, to help them participate in the workforce.

You can find out more about the Inclusion Support Program on the Australian Government’s Department of Education website or ask your local child care service for more information.

Autism Specific Early Learning and Care Centres

In addition to the Helping Children with Autism (HCWA) package, the Government has established six Autism Specific Early Learning and Care Centres (ASELCCs) across the country – in Sydney, Brisbane, Adelaide, North West Tasmania, Melbourne and Perth.

The ASELCCs provide early learning programs and specific support for autistic children up to six years of age in a long day care setting. They also provide parents and carers with support in the care of their children, and give them the opportunity to participate more fully in the community.

Through their affiliations with universities or hospitals, the centres have a research and workforce-training component, which helps to achieve a better understanding of autism and increase workforce capacity. For more information, contact your state or territory Autism Specific Early Learning and Care Centre, at the following locations:

  • South Western Sydney: KU Marcia Burgess Autism Specific Early Learning and Care Centre
  • Brisbane: Queensland Autism Specific Early Learning and Care Centre – AEIOU for Children with Autism
  • Adelaide: Anglicare SA, Daphne Street Child Care and Specialist Early Learning Centre
  • North West Tasmania: North West Tasmania Autism Specific Early Learning and Care Centre
  • Melbourne: La Trobe University Community Childrens Centre
  • Perth: Mercy Child Day Care Bedford

Child Care or Kindergarten Support

 Each state and territory has various support programs to assist children with autism at mainstream kindergarten. Some states have access to support educators who will work alongside teachers and families to support the needs of the child in the general kindergarten setting.

For further information, contact your state or territory autism association.


Family advocacy

Advocating involves working with organisations and service providers to ensure access to supports and services so you or your child can fully participant in the community.

For example, you might have an advocate to assist you in getting support for your child in kindergarten, or assistance when attending planning meetings with government organisations, such as the NDIS.

If you need support getting started, or for attending planning meetings an advocacy service may be useful.

Autism Aspergers Advocacy Australia is a national organisation directly representing people with autism and their families. The organisation regularly develops and promotes national policy, and reports on outcomes.

There are also state-based family advocacy groups – many of which are delivered by Legal Aid – to support families to promote and defend the rights and interests of people with autism or other developmental disabilities.

Recreation

 There is a range of recreational activities for young children with autism – some may be for all children in the community, while some may be autism, or disability-specific.

Choosing a recreation activity for your child will depend on their interests, your family dynamics, your financial situation, transport, individual needs, and availability of groups in your area.

To find out about recreation activities available to all children in your area, an internet search will provide a few ideas. You may also be able to find some activities by asking other families in your neighbourhood, talking to people at your child’s school or child care, or by contacting your local council.

Occupational therapists, allied health professionals, or state or territory autism associations will be able to provide you with information about any recreational activities in your area that are autism-specific for a list of recommendations.

Learning to swim

Living in Australia, learning to swim is an important part of childhood. For some children with autism, learning to swim can present many challenges.

Some children with autism may be able to participate in mainstream community or school swimming lessons, while others may require a modified program. Most states and territories offer modified programs for children with autism and other needs.

For general swimming programs contact your school, council or local swimming pool. For modified swimming lessons for children with autism contact your local council or autism association to find out what is available in your area.

Health

Children can be diagnosed with autism between 18-20 months of age. Younger siblings of children already diagnosed are sometimes assessed prior to their first birthday.

If you have any concerns about your child’s development, we encourage you to investigate further by consulting your GP and/or paediatrician, and seeking an assessment.

In order to diagnose autism in early childhood, your child would need to be assessed, either by a trained professional, or by a multi-disciplinary team, which may include a paediatrician, psychiatrist, clinical psychologist or speech pathologist.

Along the way, it is also likely that your child will have appointments with a range of allied health professionals, including speech pathologistsoccupational therapists, audiologists, optometrists, orthoptists and physiotherapists.

Your child may also be diagnosed with a co-occurring condition, such as an intellectual disability or epilepsy. For more information about common co-conditions and where to seek support for an additional diagnosis, go to our Co-conditions section.

When it comes to diagnosis, there are both government funded and private services available. Wait times for government-funded services can be quite lengthy, whereas private services tend to have a shorter waiting time, but have a fee associated with the assessment.

There may be Medicare rebates available to assist with the cost of seeking a diagnosis. Find out more about diagnosis in the early years here, and financial support here.

Daily living skills

You may find that your child needs extra support relating to learning daily routines, living activities and skills, such as toilet training, eating, sleeping, and communication.

The best place to start in better understanding your child’s needs is by seeing your GP and getting a referral to an allied health care professional, such as an Occupational Therapist (OT). OTs can assess your child’s needs and recommend a range of activities and exercises that will help them to develop their skills.

If their needs are communication based a GP may refer you to a speech pathologist, or if your child has challenges relating to eating a dietitian may be referred.

For more information about early interventions that will help your child with developing their key skills, visit our Strategies and Interventions page.

Emotions

A child’s ability to understand and express emotions starts developing from birth.

For many children with autism, it can be hard for them to recognise and express their emotions.

In particular, it might be difficult for them to recognise facial expressions and the emotions behind them, copy or use emotional expressions, understand and control their own emotions, and understand and interpret emotions.

But with the right support, their skills in the area of emotional development can be improved, which can help them to understand and respond in everyday interactions.

For example, when you’re reading a book, point out emotions to your child: “Look – Tom is crying. He must be sad”.

We also recommend acknowledging your child’s emotions: “What a loud laugh! You must be happy.”

You could also try using emotion cards with photos of faces and the context surrounding the expression to teach your child basic emotions, or use strategies such as Social Stories™.

Short term accommodation or care

Caring for a child with autism can sometimes be emotionally and physically draining. To ensure you are able to support your child, it can sometimes be a good idea to take a break. You might like to consider short term care options.

This can include asking family or friends to care for your child with autism, or your other children, for a short period while you do an activity like go to the movies, go for a walk, or it may be overnight so you can have a short get away.

Alternatively, you may be able to access paid support, or short term accommodation, where someone looks after your child, to give you some time to rest, recuperate and just be you, as well as giving your child the opportunity for different experiences.

Whether the care is a few hours or a few weeks, sometimes it can support yours, and your child and families emotional and physical wellbeing. It can be accessed occasionally or on a more regular basis, and can occur either in your own home or somewhere else.

Learn More About Autism Here

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